Well, we got the rest of the bloodwork results back, and good news! Everything came back normal. So, that means that there is no enzyme problem. However, that also means that we have no idea what had been holding Camden back. We(and the doctors) are now just assuming that Camden has been on a very odd trajectory and will eventually even out and be just like every other kid! He will ocntinue to be closely monitored by his doctors and will also continue to recieve therapy from the Early Intervention program.
Camden has also been making huge strides developmentally. He is still a little bit behind, but is almost caught up to where he should be! He is sitting up, babbling, playing with toys and interacting with his big sister. He is still an extremely mellow boy and is one of the happiest babies that I(and others) have ever seen. He is doing well starting solids, and has started eating a bit of table food. It is wreacking havoc on his intestins, but we are still in close contact with the pediatric gastroenterologist to keep it all in balance.
Sophie is still an amazing little girl and is quite the little mommy. She loves to help out with Camden, feeding him, soothing him, and making him laugh. She has "Dolly" that she feeds, burps and puts to bed. She is just an incredible daughter and sister. Her vocabulary is growing each day and she is starting to "pretend". She is such a sweet girl and a little comedian to boot!
Sunday, August 9, 2009
Tuesday, August 4, 2009
Early Intervention, Round 1
Well, Camden had his first real session with Early Intervention today. He did really well. He had a bit of a hard time because he was distracted by Sophie, but that was to be expected. He showed off all of his skills, and moved around all over the place. They said that he is doing really well. Still a little bit behind, but doing so much better than he was a few motnhs ago. They have their weekly meeting tomorrow, so they will call us and let us know what they decide to do from here on out. It could just be monthly visits out and mostly just monitoring him to make sure that he doesn't fall behind and keeps progressing. However, they did ask about Sophie's speech. She is very hard to understand and doesn't articulate words very well. They asked if we would be interested in getting her into EI with a speech therapist to work on her articulation. I said "Yes!". I know she gets frustrated when we are not able to figure out what she is saying. I think she would benefit greatly from someone working with her that really knows what they are doing. SO, if it's not one child with problems, it's the other!
Friday, July 31, 2009
Enzyme Schmemzine!
Well, we got some preliminary bloodwork results back showing that Camden may have something called "Fatty Acid Oxidation Disorder". It means that he can't break down the food he eats in the way he is supposed to. He had more blood drawn, but it has to be sent to a lab in Portland, so it will be a while before we get the results back. At least we are making progress!
Friday, July 24, 2009
Air conditioning woes....
Holy hot batman! Our air conditioning decided to go out on the hottest day of the year! It was 105 outside, and 87 inside. I had been gone all day getting Camden's pictures taken, and then hanging out with my mom and neice at the mall. We came home, all of us exhausted, only to be greeted with warm air when we came inside. Camden still fell asleep, but Sophie couldn't go to sleep because it was too hot/she was too sweaty. So, we were lucky enough to find a friend to take us in! We played at Niky, Deagan, and Tobyn's house until Glenn got home, then went out to eat. Anything for air conditioning! Luckily, my dad and Lloyd were able to get out to the house that evening to get things working. It was still 80 in the house when we went to bed, but was cooling down. We are still in the middle of a heat wave, but at least it's staying down just under 100. You know it's going to be a hot day when your air conditioning comes on at 6AM!
Tuesday, July 21, 2009
Camden sits!
Woo hoo! Crazy little boy started sitting on his own the other day. We were outside playing in the little swimming pool, and I got him out and sat him up in the grass. Much to my surprise, he sat by himself! He now acts as if he has been sitting up for months. He is delighted to see the world from a new angle, and big sis thinks it's pretty funny too. We are much encouraged by his tremendous progress, and are feeling pretty good about things. He is catching up pretty quickly for how far behind he was. The ladies at Early Intervention are having their "Camden meeting" tomorrow to decide on a course of action for him, and we should have someone out to our house by next week to start working with him. So, things are moving right along.....
Friday, July 17, 2009
Early Intervention
We had Camden's Early Intervention appointemnt today and he qualifies for services. The team is meeting on Wednesday to discuss what specific services he will get, then they will start coming out to the house to do therapy with him in the next week or two. I also found out that if we had gotten in earlier, they would have been able to help out with the cost of his helmet! So bummed about that, but there's nothing I can do now. I am just glad that he will be able to get some help and that they come to us! That will make things so much easier than having to run all over town for appointments like we have been doing.
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